Types of EB
Epidermolysis bullosa is a rare, inherited condition that makes the skin more delicate, leading to frequent wounds and blistering. The chronic wounds that result may be painful and take a long time to heal.
There are 4 main types of EB: EB simplex (EBS), Kindler EB (KEB), junctional EB (JEB), and dystrophic EB (DEB). Each causes fragile skin and blisters and can range in severity.
EBS
EBS affects the outermost layer of the skin and many cases are considered mild. In more severe cases, it can affect nails, hair, or areas like the mouth, vagina, or anus.
KEB
Kindler EB causes sensitivity to sunlight and gradual changes in skin color and texture. Over time, it may also lead to the fusion of fingers or toes.
JEB
JEB affects the middle layer of the skin and can cause severe blisters all over the body. It can involve the mouth, hair, nails, and sometimes internal organs.
DEB
DEB causes blistering, which may start at birth or in early childhood. Symptoms vary from mild (such as nail loss or oral complications) to severe (such as scarring that fuses fingers or toes or an increased risk of skin cancer).
FILSUVEZ is for dystrophic and junctional EB wounds.
Managing DEB or JEB
Managing dystrophic or junctional epidermolysis bullosa on your terms
If you are living with dystrophic or junctional EB, you likely know your diagnosis well. You know that having EB often means caring for fragile skin that requires frequent, lengthy, and sometimes painful wound care. Over time, many people develop a wound care routine with their doctor that fits their individual needs and daily life and responsibilities.
Those living with epidermolysis bullosa often take an active role in decisions about their care, including:
Managing dressing changes as part of your regular routine
Coping with the day-to-day challenges of living with or caring for a loved one with EB
Working with a team of doctors to help manage care
Navigating financial considerations
Watch this video to learn more about epidermolysis bullosa and FILSUVEZ, and hear about available support
See how FILSUVEZ helps put you in control of your wound care routine
About FILSUVEZ